We are looking for someone with experience of not for profit governance, or an enthusiastic person with knowledge of ME/CFS who is keen to learn about governance. The Trustees meet quarterly, and the Working Group meets monthly (including the Trustees). Trustees are asked to contribute to Board discussion and decision making. Orientation and support are provided and further training is through participation of Board meetings.

We are a small trust with big plans! Our work helps people with ME/Chronic Fatigue Syndrome and Fibromyalgia to live a better life while navigating the challenges of these long term illnesses. Our aim is to open a dedicated respite for people with ME/CFS to provide a sanctuary for safe regeneration of body and spirit, as well as providing carer respite, and we have a number of projects we are implementing on our journey towards opening the respite.


Our new Trustee will preferably have personal experience of ME/CFS, and will bring skills in one or more of following areas: Governance in Not for Profit; Fundraising and Sponsorship; Senior Management; Networking. A medical or legal background would be an advantage. If you have experience in all or most of the areas above, please make contact to discuss your involvement.

As this is a small team its important that we get to know the potential applicant before any appointments are made through participation in the Working Group Monthly meetings.

A Police background check is required for this role.

Time commitment:

The Trustee and Working Group meetings are online. During the week there will be discussion as needed via phone or email which should on average take no more than 1 to 2 hours per week.

Getting started:
The first step is to express your interest by filling out the form below. We will then put you in touch directly with the organisation for more information on the role and how to proceed.

Ref: 4428

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